Takes place Saturday, April 23rd at St. John’s Lutheran Church
Grove City, Ohio (March 2, 2022) – The Central Ohio Chapter of the Huntington’s Disease Society of America (HDSA) will host the Central Ohio Hoopathon on Saturday, April 23rd at 10:00 AM at St. John’s Lutheran Church. All proceeds support HDSA’s mission to improve the lives of people affected by Huntington’s disease (HD) and their families.
“We want the HD Community to know that they are NOT alone in this fight,” said Camille Colletti, HDSA’s Upper Great Lakes Regional Development Officer. “While HD might be rare, there are other families and friends here to support you within your very own community because Family is Everything.”
The event is organized by HDSA’s volunteer-led Chapters and Affiliates nationwide to recognize those who have made an impact in their community while inspiring others to join the fight against HD.
"After a 2 year hiatus, we are so excited to meet back in person this year for the Hoop-A-Thon," said Zach Vaughn, Event Coordinator. "This annual basketball themed event is about more than just raising money to support families effected by HD. It's a fun and interactive day that also brings our community together. We are a family and we are here to support one another. We can't wait to see everyone and share a hug and a good time!
For more information about the event, please contact Zach Vaughn (vaughanz017@outlook.com, 614-352-5009). Online registration and donation can be found at CENTRALOHIO.HDSA.ORG/HOOPATHON
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Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. HDSA was founded in 1967 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800)345-HDSA.
FOR IMMEDIATE RELEASE
Matthew Santamaria
Communications Manager
(212) 242-1968 ext. 204
msantamaria@hdsa.org